Down Syndrome & Communication

Children with Down syndrome often have language and communication differences that benefit from early, ongoing support. Speech and language development is influenced by multiple factors including muscle control, health, hearing, vision, and communication experiences. Visual learning strategies and integration of communication into daily activities are particularly effective, and most children make excellent progress with appropriate intervention.

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7 external resources

Understanding Language Development in Down Syndrome

Children with Down syndrome typically follow the same sequence of language development as other children, but at a slower pace. Research consistently shows that understanding (receptive language) is often significantly stronger than speaking (expressive language). This gap between what a child understands and what they can say is one of the most common patterns in Down syndrome.

First words typically appear around 16-24 months, compared to 10-14 months in typical development. However, there is wide variation—some children speak their first words earlier, while others may not until age 3 or beyond. The important thing is that communication continues to develop, whether through speech, signs, or other methods.

Vocabulary development often outpaces grammar. A child might have a large vocabulary of single words but struggle to combine them into sentences. Grammar skills typically develop more slowly and may remain an area of relative challenge. However, with targeted intervention, significant improvements in sentence structure and grammar are achievable.

  • First words typically emerge between 16-24 months (but timing varies widely)
  • Receptive language (understanding) is usually stronger than expressive language (speaking)
  • Vocabulary often develops faster than grammar and sentence structure
  • Visual learning is typically a significant strength
  • Speech clarity may be affected by oral-motor differences
  • Most children benefit from AAC (signs, pictures) while verbal skills develop
  • Language continues developing well into adulthood with ongoing support

Oral Motor Challenges and Speech Clarity

Many children with Down syndrome experience oral motor challenges that affect feeding, swallowing, and speech clarity (intelligibility). Research shows that 61% of parents report their child has oral motor skill difficulties. Understanding these challenges helps parents and therapists target the right areas for intervention.

Anatomical differences include a smaller and narrower upper jaw, high palatal arch (roof of mouth), and relatively large tongue in a smaller oral cavity. Physiological challenges include low muscle tone (hypotonia) throughout the body including the face and mouth, and weak oral-facial muscles. These factors combine to create common patterns like open mouth posture and tongue protrusion.

Many children also have hypersensitive or hyposensitive tactile responses around the mouth, which impairs the sensory feedback necessary for learning precise speech movements. This sensory component is often overlooked but is crucial for speech development.

Common Speech Patterns

  • Reduced speech intelligibility (harder for unfamiliar listeners to understand)
  • Inconsistent speech sound errors
  • Difficulty with consonant clusters (e.g., 'stop', 'drink')
  • Final consonant deletion (e.g., 'ca' for 'cat')
  • Reduced speech rate or rhythm differences
  • Voice quality differences (breathiness, hoarseness)
  • Nasality due to anatomical differences

Oral Motor Skill Components

  • Muscle tone: Foundation for all oral movements
  • Strength: Power needed for chewing, swallowing, and speech
  • Range of motion: How far the tongue and lips can move
  • Speed: Quickness of movements for fluent speech
  • Coordination: Timing movements together smoothly
  • Dissociation: Moving tongue independently from jaw

Evidence-Based Therapy Approaches

  • Early feeding therapy strengthens muscles later used for speech
  • Oral motor exercises targeting specific skill deficits
  • Broad Target Speech Recasts (BTSR) for speech comprehensibility
  • Combined grammar and speech treatment produces better outcomes
  • Multi-sensory approaches incorporating visual, tactile, and auditory cues
  • Consistent home practice between therapy sessions

AAC and Sign Language Support

Augmentative and Alternative Communication (AAC) is an umbrella term for any device, strategy, or system that supports or replaces spoken speech. Most people with Down syndrome benefit from some form of AAC at some point in their lives. Critically, research consistently shows that using AAC does NOT prevent or delay speech development—in fact, it supports it.

AAC includes both unaided options (sign language, gestures, facial expressions, body language) and aided options (communication boards, picture symbols, speech-generating devices). The best approach depends on the individual child's strengths, needs, and communication partners.

Sign Language and Makaton

  • Makaton combines signs, symbols, and speech—never used alone without speech
  • Signs provide visual support for spoken words, making communication clearer
  • Can begin before speech emerges—most children start signing before talking
  • Children naturally drop signs at their own pace as speech develops
  • Helps reduce frustration by giving children a way to communicate now
  • Supports memory, motor skills, and attention/concentration
  • Common starting signs: more, finished, eat, drink, help, toilet, yes, no

Visual Communication Systems

  • Picture Exchange Communication System (PECS) for requesting
  • Visual schedules for routines and transitions
  • Choice boards for daily activities (snacks, toys, activities)
  • Now/Next boards to support transitions
  • Symbol-supported stories for literacy and comprehension
  • First-Then boards for behavior support
  • Photos of real objects/people alongside symbols

High-Tech AAC Options

  • Tablet-based communication apps (Proloquo2Go, TouchChat, LAMP)
  • Dedicated speech-generating devices
  • Start simple and increase complexity as skills grow
  • Should be introduced early, not as a 'last resort'
  • Work with SLP to select appropriate system and vocabulary

Early Intervention: Birth to Age 3

Research strongly supports early intervention beginning in infancy. Speech and language therapy should begin during the first year of life and continue through preschool and beyond. The early years are critical because the brain is most plastic (adaptable) during this time, and foundations for later language development are being established.

Early intervention in Down syndrome doesn't just focus on speech—it addresses all areas of development that support communication, including hearing, vision, motor skills, cognitive development, and social-emotional growth.

Birth to 12 Months

  • Hearing screening and ongoing monitoring (hearing loss affects 60-80% of children)
  • Feeding support to develop oral motor strength
  • Parent coaching on responsive interaction styles
  • Introduction of baby signs (milk, more, all done)
  • Sound play and vocal turn-taking games
  • Face-to-face interaction and eye contact games
  • Reading board books with simple pictures

12-24 Months

  • Expansion of sign vocabulary to 50+ signs
  • Introduction of picture symbols and choice boards
  • Joint attention activities (pointing, showing, sharing)
  • Routines with predictable language (bath time, mealtime songs)
  • See and Learn language program can begin around 6 months
  • Daily reading with interactive questions
  • Music and movement for language learning

24-36 Months

  • Combining signs and words into phrases
  • Expanding vocabulary through categories (animals, food, vehicles)
  • Phonological awareness activities (rhymes, songs, sound games)
  • Pre-literacy skills (print awareness, letter recognition)
  • Social communication in play with peers
  • Transition planning for preschool
  • Group speech therapy opportunities

Reading and Literacy

Research from Down Syndrome Education International demonstrates that many children with Down syndrome can learn to read successfully, and remarkably, reading actually supports spoken language development. Reading provides a visual, permanent representation of language that plays to the visual learning strengths of children with Down syndrome.

The See and Learn program provides structured, evidence-based approaches to teaching reading alongside language skills, beginning as early as 6 months with picture-word matching and progressing through word reading, sentence building, and comprehension.

Studies show that children with Down syndrome who learn to read often have better grammar and longer sentences than those who don't, because reading exposes them to complete sentence structures repeatedly.

Literacy Development Sequence

  • Shared book reading from infancy (builds vocabulary and attention)
  • Picture-word matching (connecting images to printed words)
  • Whole word recognition (sight words before phonics)
  • Building two-word phrases with word cards
  • Reading short sentences and simple books
  • Phonics instruction (letter sounds) - often taught later
  • Writing development alongside reading

Supporting Reading at Home

  • Read together daily—make it enjoyable, not a test
  • Point to words as you read to build print awareness
  • Label items in the home with written words
  • Use personalized books with photos of child and family
  • Create reading materials at child's level
  • Celebrate all reading attempts and progress

School-Age Support and Inclusion

Research consistently demonstrates that children with Down syndrome have better academic, behavioral, and speech and language outcomes when educated alongside typically developing peers in inclusive settings. Peer models provide rich language input and motivation to communicate.

Successful inclusion requires appropriate supports, accommodations, and collaboration between families, teachers, and therapists. An Individualized Education Program (IEP) should address communication goals across all school activities, not just during speech therapy.

Classroom Accommodations

  • Visual schedules and supports throughout the day
  • Extended time for processing and responding
  • Pre-teaching of vocabulary before new units
  • Modified materials at appropriate language level
  • Peer buddy systems for communication support
  • Preferential seating (see teacher's face, reduce distractions)
  • Regular hearing and vision checks (fluctuating hearing loss is common)

IEP Communication Goals

  • Functional communication in daily routines
  • Vocabulary expansion in curriculum areas
  • Sentence length and complexity targets
  • Speech intelligibility goals with measurable outcomes
  • Social communication with peers
  • AAC use and competence where appropriate
  • Carryover of skills across all settings

Supporting Communication at Home

The home environment is where most language learning happens. Parents and caregivers provide thousands of communication interactions every day, and small changes in how adults interact can have significant impacts on language development.

The key principles are: follow the child's lead, create communication opportunities, model language slightly above the child's level, and give plenty of time for processing and responding.

Daily Routine Opportunities

  • Morning routine: naming clothes, body parts, actions
  • Mealtimes: requesting, choosing, describing food
  • Bath time: body parts, actions, water play vocabulary
  • Getting dressed: clothing vocabulary, sequences
  • Shopping: naming items, making choices, social greetings
  • Cooking: following directions, sequencing, vocabulary
  • Bedtime: reading, reviewing the day, songs

Communication Strategies

  • Get down to eye level for face-to-face interaction
  • Wait 10+ seconds for responses (processing takes longer)
  • Use simple sentences (1-2 words above child's level)
  • Emphasize key words with stress and gesture
  • Expand what child says (Child: 'ball' → Adult: 'big ball')
  • Narrate your actions: 'I'm washing the dishes'
  • Ask questions sparingly—commenting builds language faster

Technology and Media

  • Choose interactive apps over passive watching
  • Watch educational content together and talk about it
  • Use video calls with family for social communication practice
  • Record videos of child communicating to track progress
  • Limit background TV/media (it reduces parent-child conversation)

Hearing and Health Considerations

Hearing loss is extremely common in Down syndrome, affecting 60-80% of children at some point. Many experience fluctuating conductive hearing loss due to frequent ear infections and middle ear fluid (glue ear). Even mild or fluctuating hearing loss significantly impacts speech and language development.

Regular hearing monitoring is essential—at minimum annually, but more frequently in early childhood or if concerns arise. Many children benefit from hearing aids, grommets (ear tubes), or other interventions.

  • Get hearing tested at birth and annually thereafter (minimum)
  • Watch for signs of hearing difficulty (not responding, turning up volume, unclear speech)
  • Treat ear infections promptly to minimize hearing impact
  • Consider grommets (ear tubes) if fluid persists
  • Hearing aids may be needed even for mild loss during critical language years
  • Ensure classroom accommodations for hearing needs (seating, acoustics)
  • Vision should also be checked regularly—visual impairments are common

When to Seek Additional Help

  • No babbling by 12 months
  • No gestures (pointing, waving) by 12-14 months
  • No words or signs by 18-24 months
  • Not combining words/signs by age 3
  • Significant regression or loss of skills at any age
  • Frustration or behavior challenges due to communication difficulties
  • Persistent feeding or swallowing difficulties
  • Suspected hearing changes or ear infections
  • Not making expected progress in current therapy program

Expert Tips

Signs Don't Delay Speech

Research consistently shows that using signs does NOT prevent or delay speech development—it supports communication while verbal skills develop. Most children naturally drop signs as they become able to say the words clearly.

Processing Time Matters

Children with Down syndrome often need 10 seconds or more to process language and formulate a response. Wait silently—avoid repeating or rephrasing too quickly, which restarts the processing.

Visual Strengths

Use the visual learning strength! Written words, pictures, signs, and demonstrations are often easier to learn from than spoken instructions alone.

Reading Supports Speech

Teaching reading early can actually help spoken language develop because it provides visual, permanent language models that children can study and learn from.

Related Resources

Late Talkers & Early Intervention

Late language emergence (LLE), commonly called 'late talking,' affects 10-20% of two-year-olds. While some late talkers eventually catch up on their own ('late bloomers'), recent research shows that natural catch-up rates are lower than previously thought—only about 6-19% fully catch up without intervention. Early evaluation and intervention provide the best outcomes and should not be delayed.

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Autism & AAC Communication

Children with autism spectrum disorder experience a wide range of communication differences, from minimal speech to extensive vocabulary with challenges in social use of language. Augmentative and Alternative Communication (AAC) provides powerful tools to support communication—and research consistently shows it supports, not hinders, speech development. One-third to one-half of minimally verbal children with ASD benefit significantly from AAC intervention.

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Feeding & Oral Motor Skills

Feeding difficulties and picky eating can range from mild selectivity to serious swallowing disorders (dysphagia). While most children go through typical picky eating phases, some have more significant feeding challenges that require professional support. Understanding the difference between normal picky eating and problematic feeding helps you know when to seek help.

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Professional Organizations & Websites

These reputable organizations provide reliable information, resources, and support for families navigating speech and language concerns.

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